In the two months I've been with IB, we've brought her insulin down from 25 units to 15. Remarkable. There are a lot of moving parts to this exploration (which feels more like experimentation, but that doesn't sound good, since this is a human being we're talking about).
The exercise is pretty well set for now...getting them done on a regular basis is on an OK projectory. Someday we'll up the reps or add new ideas, but for now, just getting her to move is a big enough challenge. I have stations set up around the house, and exercises to do at various times of the day, so she doesn't get overwhelmed and start making up excuses to get out of it.
Food is quite another story. So far, we've made a move from what I call "neutral food"...food that doesn't necessarily hurt her, but doesn't help her either...to nutrient-dense food. Almost every single meal and snack contains a protein and a fruit or veggie. We're also moving toward a gluten-free diet. But there is still an uncomfortable time of day for her, right after her morning BM, where she groans and whines for around an hour. Her small intestine is in pain. She is exhausted. She is pale. One Dr. suggested I read about Diabetic Dumping Syndrome, where the food dumps from the stomach to the Sm intestine too quickly, causing cramping and discomfort. One of the triggers is milk products...which has lead to a smoothie experiment.
I'm trying smaller amounts: 1/2 cup yogurt with banana as my control. I know bananas sit well with her. The smaller amount of yogurt seems to be working. I've also stopped her coffee (she has yet to notice..?).Three days with less cramping. I'll keep off the coffee for a while, and start playing with different banana-combos to see what sits well and what doesn't. If they're all OK, then we know the trigger is either too big a smoothie or coffee.
As the insulin units required has decreased, we've been discussing the next move. It seems to be mini-meals, to allow the insulin to work more efficiently. I've started on that, but the CNA schedules will have to change in order to do that correctly.
This blog is uncharacteristically dry, but I wanted to get the day-to-day info down first and comment on the personal impact at another time.
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